This year, the ALA is focussing its attention during Lymphoedema Awareness Month to knowing the signs of lymphoedema. Accredited Practitioners will know only too well that many people do not have their lymphoedema diagnosed for some time, which can lead to the condition becoming quite advanced as well as having increased infections and other complications as a result.
With early diagnosis, assessment, intervention and treatment, this chronic condition can be more easily managed and the quality of life improved.
As the ALA advocates in the 2019 position paper on the early detection of breast cancer-related lymphoedema (here) - education, early assessment and intervention for lymphoedema will lead to better outcomes for the patient.
A poster 'Know the signs of lymphoedema' can be downloaded below. There is also a supporting pamphlet which can be given to patients, with a download link below.
The ALA will be sending a poster and pamphlets to medical centres where there are patients who may be at an increased risk of developing lymphoedema, such as cancer centres.
If you would like additional copies of the poster or pamphlets sent to you, please email email@example.com
The ALA will also be sharing stories of those who live with, or work with lymphoedema. These will be shared via the ALA facebook page, we encourage you to share these stories with your own networks.
Members may also be interested in a video of Kathy Bates, national spokesperson for the Lymphedema Education and Research Network in the US - raising awareness of lymphoedema. A link to the video can be found here
During Lymphoedema Awareness Month, the ALA will be sharing stories for those either living with lymphoedema or working in the field.
ALA member, Sarah, who you may have seen waving the lymphoedema flag on ABC's Hard Quiz has now been interviewed by ABC Central Victoria radio informing listeners about lymphoedema during lymphoedema awareness month. Click on the image below to hear her interview.
World Lymphoedema Day in 2020: Friday 6 March - the ALA is hosting a free webinar for members. Please find details here
2020 Reference Material
ALA Members, you will receive a lymphoedema awareness month poster with your February edition of Lymph Exchange.
For more information on the Put lymphoedema on the list campaign, click HERE
Organise a lymphoedema get together with support groups, patients, workplaces and local treatment centres. Host an event that provides opportunities for practitioners and carers and patients to share their stories, make sure you take lots of photos.
Some ideas for your event might include:
After your event don’t forget to:
Research to find local media, draw up a list of the media outlets you want to target and find the most relevant contact:
If you are going to invite the media to your event, think about a hook, make sure the story that you are going to tell grabs the journalist’s attention and reinforce the photo opportunity i.e. a room full of people on pumps, a yoga session with everyone in light blue. Contact the media outlets before you want them to publish and follow up your initial email with a phone call.
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