The primary goal of the lymphoedema registry (ANZLoR) is to help those living with lymphoedema to receive better care and support through improved services and resources.
The lymphoedema registry will collect information from people living with lymphoedema. The de-identified information is collated and analysed using an IBM statistics data analysis program. The information will be used to inform the lymphoedema community and health service providers of the experience and needs of people living with lymphoedema.
This will provide the ALA with up to date and authentic information about lymphoedema which it can share with other organisatons to advocate for improved services for all those living with lymphoedema in Australia and New Zealand.
To join the lymphoedema registry (ANZLoR) you are asked to complete a short survey. Your information is combined with information provided by other people who live with lymphoedema who complete the survey.
Complete the survey online HERE or
Download the survey HERE
For more information the patient registry visit the ANZLoR website HERE
Researchers who would like to a call for contributors to be sent to the lymphoedema registry can apply for access using the Lymphoedema Patient Registry Application Form & Request for Access.
To download the application form, click HERE.
The request for access will be considered by the ALA Research Committee.
The Australasian Lymphology Association (ALA) is committed to promoting the development of lymphology in Australasia. The Association will strive to improve the management of those with, or at risk of developing lymphoedema and enhance communication between health professionals, educators, relevant authorities and government in regard to oedemas and lymphoedema.
