Support Groups

Groups in Australia and some Other Countries which are involved in the Support of Patients or the Spread of Information about Lymphoedema

by: J.R. Casley-Smith & Judith R. Casley-Smith (L.A.A., University of Adelaide)

This document was last amended on July 24 , 2001

This is divided into two sections: Patient Support Groups in Australia and Overseas, and Associations for Health Professionals in Australia and Overseas.

The Lymphoedema Association of Australia is not listed below since it holds no regular meetings but supports doctors, scientists, therapists and patients on an individual basis. More information about the L.A.A. is obtainable in another Section, including its addresses.

Patient Support Groups

Australia

Lymphoedema Support Group, ACT: Jenny Moore 19 Bardsley Place Holt, 2615 A.C.T. Tel. 02 6254 4753, Peter Sack 5 Hobbs Street O'Connor, 2602 A.C.T. Tel. 02 6249 8672

Lymphoedema Support Group, NSW: 79 Beechworth Rd, Pymble NSW 2010; (02) 9402 5625. fax (02) 9402 5774

N.T. Support Group: Karen Spaulding, PO Box 42719 Casuarina, NT, 0811, (08) 8927 4888, Fax: (08) 8927 4990

Lymphoedema Association Queensland: Ms. Jean Lowe, Secretary, PO Box 68, Brackenridge, Q 4017; (07) 3833 4376. fax (07) 3269 7305 Branches at Brisbane, Bundaberg, Mackay & Torquay

Lymphoedema Support Group of South Australia, Ms. Maureen Bartel, Chairperson, 26 Sandford St, KensingtonGardens, SA 5068, (08) 8431 4190, email: bartel.maureen@saugov.sa.gov.au (branch at Yorke Peninsula)

Tasmania Lymphoedema Support Group: Ms. Jill Wood, 42 Staley St., Bellerive, Hobart, Tas 7018; (03) 62 44 46 34

Lymphoedema Association of Victoria Inc.: Ms. Mary D'Elia, PO Box 2412, North Ringwood, Vic, 3134, Ph 1300 852 850,
e-mail: info@lav.org.au, website: www.lav.org.au There are now branches, Eastern Suburbs, Geelong, Gippsland, for Kids with Lymphoedema, Italian-speaking Groups, at the Mercy Hospital Lymphoedema Clinic, Mildura, Mooroolbark, Mornington Peninsula, San Remo &South-Eastern Group.

Lymphoedema. Association of W.A.: Barbara White; President 9276 8397, Norma Lloyd Penning; Vice President, Dorothy Rich; Treasurer, Joan Sheppard; Secretary j4shepp@iinet.net.au P.O. Box 2037 Claremont North 6010 WA
Ph: 0500 576 000

Other Countries

Breast Cancer Care - Helpline 0808 800 6000
Head office: Kiln House, 210 New Kings Road, London SW6 4NZ, Ph: 020 7384 2984 Fax 020 7384 3387
e-mail bcc@breastcancercare.org.uk. Website: www.breastcancercare.org.uk

British Lymphology Society
Ms. Denise Hardy/ Jane Wigg (Joint Chair), Administration Centre, P.O. Box 1059, Caterham, Surrey CR3 6ZU; (01883) 330 253; fax 01883 330 254; email: helensnoad@blsac.demon.co.uk Web Site: www.lymphoedema.org/bls/ While this group is designed for health professionals, there are also many regional representatives who give advice to patients. (See also U.K. Support Network - below).

Lymphoedema Support, Netherlands:
Mrs. J.C. van Deynen, Foarnewykje 12, 8493 RA Terhorne, The Netherlands

Nederlands Lymfoedeem Netwerk (DLNet), R.J. Damstra, H. Voesten Web Site: www.lymfoedeem.nl

Lymphoedema Support Network, New Zealand:
Mrs. Jenny Bartley (neé Thomas), Auckland Lymphoedema Clinic, 204 Queen's Rd., Panmure, Auckland, N.Z.
(09) 527 7899; email: bartley@ihug.co.nz

Lymphoedema Support Network, UK:
Lymphoedema Support Network (LSN), St. Luke's Crypt, Sydney Street, London, SW3 6NH Tel: 020 7351 4480, Fax: 020 7349 9809, email: adminlsn@lymphoedema.freeserve.co.uk

National Lymphedema Network USA: Ms.Saskia Thiadens, Latham Square, , 1611 Telegraph Avenue, Suite 1111, Oakland, CA, USA 94612-2138 Ph 510-208-3200 Fax 510-208-3110 Infoline (800) 541-3259
email nln@lymphnet.org website: www.lymphnet.org

Professional Groups (for Physicians, Scientists & Therapists)

Australia

Australasian Lymphology Association:
Ms. M. O’Connor (Vic) Vic. Lymphoedema Practice 5 Warrigal Rd, Surrey Hills, VIC 3127, (03) 9890 3778;
fax (03) 9890 8405

Lymphoedma Practitioners Group of NSW: Ms. Jacqui Hamilton, 28 Risdon Cres., Kariong, NSW 2250;
Ph/fax (043) 404-794

Queensland Therapist Groups: Ms. Reul-Hirsch (Q) , Physio. Dept., Roy. Brisb. Hospital, Herston Rd., Brisbane, Q 4000; (07) 3636 7288; fax (07) 3636 1665

Lymphoedema Practitioners Education Group, Vic. Branch: Phillipa Bourke, 804 Burke Rd, Camberwell, VIC 3124,
Ph: (03) 9882 7576, m. 0411 377 568

Other Countries

International Society for Lymphology:
Prof. M. Witte (Secretary General), Dept. Surgery, Univ. Arizona College Medicine, PO Box 245 063, 1501 N. Campbell Ave., Tucson, Ariz. 85724, USA; tel (520) 626 6118; fax (520) 626-0822; email: lymph@ccit.arizona.edu

European Group of Lymphology (Groupement Européen de Lymphologie):
Dr. O. Leduc (Secretary) Service de Kinesitherapie, Université Libre de Bruxelles, Laarbeeklaan 103, 1090 Brussels, BELGIUM; fax (02) 650 24 73

British Lymphology Interest Group:
President: Administration Centre, P.O. Box 1059, Caterham, Surrey CR3 6ZU;
(01883) 330 253; fax (01883) 330 254; email: BLIG@compuserve.com.
There are also many regional representatives who give advice to patients.

Many other countries and groups of countries have such professional groups, many of which are affiliated with the International Society for Lymphology (above) from whom information may be obtained.